Posted by: expc43 | January 4, 2010

Hello world!

I have recently been diagnosed with Lymphoma and will be starting my treatment shortly. I have created this blog for two reason, to inform and update anyone interested enough to want to know how I am fairing and secondly for me to keep a diary of what happened and when. I find that, even though this situation has been going on for a relatively short time, I am still loosing track of what happened and when.

As this is my first post and I don’t want to go on too long I shall be brief:

Week 18-24.10.09 I found a painful lump in my groin. I can honestly say that I had not noticed it before.

10.10.09 I paid my first visit to a doctor in France. He arranged then and there for a blood test (another first) and a scan at Cahors Hospital.

20.10.09 Blood test taken at the laboratory in Gourdon. Didn’t hurt after all.

22.10.09 Picked up the blood test results. All looked to be OK to me and Sue.

13.11.09 Cahors Hospital for a scan. A highlighter liquid injected in via a drip. Waited about an hour for the results. Came in large folder, prints, CD and an analysis from the doctor who did the scan. Pictures show a large number of small tumours but some larger ones in the lymph system. Report suggested a biopsy of the original lump in the groin.

16.11.09 Back to the GP who looked at the results and made an appoitment with a specialist at Cahors.

02.12.09 See the specialist at Cahors. He is not a surgeon so further referal.

08.12.09 See surgeon. He seems alarmed at the size of the lump and will be doing the biopsy under a general anaesthetic.

10.12.09 See anaesthetist. As we don’t know my blood group sent down to the lab at the hospital for another blood sample.

16.12.09 To Cahors for my biopsy. To counteract MRSA you have to shower the previous evening and use an Iodine solution instead of soap. Arrived at hospital at 0700hrs and shower again. Operation went OK and discharged that evening. Over the next week local nurses visited the house to change dressing etc.

30.12.09 See cancer specialist again who confirms Lymphoma but more tests are required to identify the exact type. A bone marrow biopsy is needed but he thinks I have Mantel Lymphoma which is very slow growing and I have probably had it for some time and it may be quiet advanced. Happy New Year!

31.12.09 To Cahors for the bone marrow biopsy. Very uneasy about this and had researched it on the net and it sounded quiet awful. In fact it was done under gas and air and a local and was not painful at all. The marrow was taken from my pelvis and apart from a bit of bruising I have had no ill effects. Results will take about a week.

Thats the story so far but there are more appointments this week which I will blog about on other posts.


Responses

  1. Hi, this is a comment.
    To delete a comment, just log in, and view the posts’ comments, there you will have the option to edit or delete them.

  2. Hi Jon,

    Keep us up to speed with events.

    Best wishes at a difficult time,

    Matt

  3. Our thoughts & prayers are with you.

    Jim & Carole

  4. Hi to you both…. ][Just to let you know that we are all thinking of you both at this very difficult time..

    Ian & Ery

  5. Hi Smithy,

    Just to let you know that I am thinking of you!!

    With lots of love from Elli xx

  6. Hi Jon

    After such a long time of not hearing how you’re doing, it seems such a shame to be contacting you like this. However as always you sound positive and will obviously be fighting this. Sending lots of love and best wishes to you and Sue

    Bex

  7. Hi Jon, best wishes to you I am sorry to hear of your news. Love and thoughts are with you and your family, give my love to your cats!!!!

    Love Jen
    xxxx

  8. A great way to keep track of things, for you and for others. It’ll also help you keep positive. You’re in the right place for this, as France will not only act fast, but do everything they can and “hang the cost”. All the very best for a speedy recovery.


Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Connecting to %s

Categories

Follow

Get every new post delivered to your Inbox.